Below is a selected bibliography of articles and books related to clinical ethics. To view a list of resources, click on a topic of interest. Links are provided to articles that have a full text version accessible for free (may require opening a free account on the journal website).
Topics
Decision Making Capacity
Articles
- Appelbaum, P. S. (2007). Assessment of Patients’ Competence to Consent to Treatment. New England Journal of Medicine, 357(18), 1834–1840.
- Hurst, S. A. (2004). When Patients Refuse Assessment of Decision-Making Capacity: How Should Clinicians Respond? Archives of Internal Medicine, 164(16), 1757–1760.
Articles requiring a subscription or fee:
- Chow, G. V., Czarny, M. J., Hughes, M. T., & Carrese, J. A. (2010). CURVES: A Mnemonic for Determining Medical Decision Making Capacity and Providing Emergency Treatment in the Acute Setting. CHEST, 137(2), 421–427.
- Siegel, A., Barnwell, A., & Sisti, D. (2014). Assessing Decision-Making Capacity: A Primer for the Development of Hospital Practice Guidelines. HEC Forum, 26(2), 159–168.
- Szmukler, G. (2009). “Personality disorder” and capacity to make treatment decisions. Journal of Medical Ethics, 35(10), 647–650.
Books
- Jonsen, A. R., Siegler, M., & Winslade, W. J. (2010). Decisional Capacity. In Clinical ethics: A practical approach to ethical decisions in clinical medicine (7th ed.). New York: McGraw-Hill.
- Lo, B. (2013). Resolving ethical dilemmas: A guide for clinicians (5th ed.). Baltimore, MD: Lippincott, Williams, and Wilkins.
Informed Consent
Articles
- Brody, H. (1989). Transparency: informed consent in primary care. Hastings Center Report, 19(5), 5–9.
- Hall, D. E., Prochazka, A. V., & Fink, A. S. (2012). Informed consent for clinical treatment. CMAJ: Canadian Medical Association Journal, 184(5), 533–540.
Articles requiring a subscription or fee:
Surrogate Decision Making
Articles
- Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The Accuracy of Surrogate Decision Makers. Archives of Internal Medicine, 166(5), 493–497.
- Torke, A., Alexander, G., & Lantos, J. (2008). Substituted Judgment: The Limitations of Autonomy in Surrogate Decision Making. JGIM: Journal of General Internal Medicine, 23(9), 1514–1517.
- Torke, A. M., Petronio, S., Sachs, G. A., Helft, P. R., & Purnell, C. (2012). A conceptual model of the role of communication in surrogate decision making for hospitalized adults. Patient Education & Counseling, 87(1), 54–61.
- Vig, E. K., Starks, H., Taylor, J. S., Hopley, E. K., & Fryer-Edwards, K. (2007). Surviving surrogate decision-making: what helps and hampers the experience of making medical decisions for others. JGIM: Journal of General Internal Medicine, 22(9), 1274–1279.
- Vig, E. K., Taylor, J. S., Starks, H., Hopley, E. K., & Fryer-Edwards, K. (2006). Beyond Substituted Judgment: How Surrogates Navigate End-of-Life Decision-Making. Journal of the American Geriatrics Society, 54(11), 1688–1693.
- White, D. B., Malvar, G., Karr, J., Lo, B., & Curtis, J. R. (2010). Expanding the paradigm of the physician’s role in surrogate decision-making: An empirically derived framework. Critical Care Medicine, 38(3), 743–750.
Articles requiring subscription or fee:
- Berger, J. T., DeRenzo, E. G., & Schwartz, J. (2008). Surrogate Decision Making: Reconciling Ethical Theory and Clinical Practice. Annals of Internal Medicine, 149(1), 48-53.
- Emanuel, E. J., & Emanuel, L. L. (1992). Proxy decision making for incompetent patients. JAMA: Journal of the American Medical Association, 267(15), 2067-2071.
- Pope, T. M. (2012). Legal Fundamentals of Surrogate Decision Making. CHEST, 141(4), 1074–1081.
- Sulmasy, D. P., & Snyder, L. (2010). Substituted Interests and Best Judgments: An Integrated Model of Surrogate Decision Making. JAMA: Journal of the American Medical Association, 304(17), 1946–1947.
- Wendler, D., & Rid, A. (2011). Systematic Review: The Effect on Surrogates of Making Treatment Decisions for Others. Annals of Internal Medicine, 154(5), 336-346.
Advance Directives
Articles
Articles requiring subscription or fee:
End-of-Life Decision Making
Articles
- Annas, G. J. (2005). “Culture of Life” Politics at the Bedside--The Case of Terri Schiavo. The New England Journal of Medicine, 352(16), 1710–1715.
- Giacino, J. T., Ashwal, S., Childs, N., Cranford, R., Jennett, B., Katz, D. I., … Zasler, N. D. (2002). The minimally conscious state: Definition and diagnostic criteria. Neurology, 58(3), 349–353.
- Helft, P. R., Siegler, M., & Lantos, J. (2000). The Rise and Fall of the Futility Movement. New England Journal of Medicine, 343(4), 293–296.
- Medical aspects of the persistent vegetative state (1). (1994). New England Journal of Medicine, 330(21), 1499–1508.
Privacy and Confidentiality
Articles
- Bok, S. (1983). The Limits of Confidentiality. The Hastings Center Report, 13(1), 24-31.
- Davis, D. (1991). Rich Cases: The Ethics of Thick Description. The Hastings Center Report, 21(4), 12-17.
- Kalavathy, M. C., de Bruyn, M., Bianco, M., Pagani, L., Hepburn, M., Hankins, C., … Kishore, R. R. (2000). Disclosure of HIV Status and Human Rights: The Duties and Responsibilities of Couples, Medical Professionals, Family Members and the State. Reproductive Health Matters, 8(15), 148.